"Mom! What do you think of this awful scarf? Mom... are you even listening to me?"
We were at the local charity shop, aiming to find a costume for my daughter to wear in her upcoming school performance as Mrs. Darbus in the high school musical. I tried to listen, I really did, but I felt distant, disconnected, and utterly exhausted.
Over the past 48 hours, I've been in and out of the workplace, attending meetings that required focus, and generally fulfilling the duties of a mom/wife. I wasn't keeping up (more on that later) and was about to pay the price.
At teatime, I couldn't hold a conversation without being in pain, and desperately tried to sleep, but couldn't relax into a comfortable nap.
I crashed due to post-exertional malaise, and the hellish 36 hours that followed.
What is Post-Exertional Malaise (PEM)?
Post-exertional malaise (PEM) is a worsening of symptoms following even mild physical or mental exertion, typically occurring 12-48 hours after activity and lasting for days or even weeks.
PEM is also known as post-exertional symptom exacerbation (PESE) or post-exertional neuroimmune exhaustion (PENE).
PEM is one of the diagnostic criteria for myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), a name that is more misleading than the illness itself. I am dealing with more than just ongoing fatigue. The Institute of Medicine recently convened an expert committee to release a report titled "Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Redefining an Illness." The committee recommended the use of the following diagnostic criteria.
For diagnosis, patients need to have the following three symptoms.
- A substantial reduction or impairment in the ability to engage in pre-illness levels of occupational, educational, social, or personal activities, persisting for more than 6 months, accompanied by fatigue.